i) Early Recovery:
ii) Coping with Changes:
iii) Dealing with Feelings
iv) Moving On
A Pocket Guide to ABI Services & Support
Information for Family Members or Carers
The journey to recovery can be a challenge after a head injury, stroke or other acquired brain injury. We hope this information makes it easier to find what you need. Click any of the headings below for more information.
Irish Heart Helpline – http://https://www.irishheart.ie/get-support/national-heart-and-stroke-nurse-helpline/
Helpline nurses can help answer your questions, and give you guidance and reassurance on stroke, adding to information you have already received from your doctor.
The Meningitis Research Foundation in Ireland – http://www.meningitis.org/ireland
Meningitis Research Foundation is combating meningitis and septicaemia in Ireland by funding research into prevention, detection and treatment, raising awareness of the diseases and their symptoms, and supporting people who have already been affected by the diseases.
Epilepsy Ireland – http://www.epilepsy.ie/
Epilepsy Ireland (previously Brainwave – The Irish Epilepsy Association) was established in 1966 by a group of individuals concerned to improve the quality of life of people with epilepsy in Ireland.
RehabCare – Galway/Mayo/Roscommon – http://www.rehab.ie/care/county.aspx?co=galway
Rehabcare operate an assisted living residential service for people with ABI in Galway, Mayo and Roscommon. They also have a transitional living unit which can be a stepping stone to full independence.
The Royal Hospital Donnybrook – http://www.rhd.ie/
The Royal Hospital Donnybrook (RHD) provides a range of rehabilitative services in a caring, collaborative and dynamic way, to meet the complex needs of people with chronic illness, physical and neuro-disability.
Quest Brain Injury Services – http://www.nln.ie/Community-Based-Rehab/Quest-brain-injury-services.aspx
Quest is a groundbreaking National Learning Network service in Galway helping people to rebuild their lives after a brain injury. Funded by the HSE Western Region, this service provides training and support for people with an acquired brain injury.
The National Rehabilitation Hospital – http://www.nrh.ie
The hospital, in partnership with the patients and families, endeavours to achieve health and social gain through the effective treatment and education of patients who, following illness or injury, require dedicated interdisciplinary rehabilitation services.
BRÍ – http://www.briireland.ie
BRÍ is dedicated to advocating for all those affected by Acquired Brain Injury. We strive to ensure that all those affected by Acquired Brain Injury have the best possible quality of life. We work to achieve change in terms of service provision, public awareness and prevention. BRÍ also coordinates a number of support groups around Ireland. These groups are an opportunity for people with ABI and family/carers to meet and share experiences in a comfortable, safe environment.
Redwood Extended Care Facility – http://www.talbotgroup.ie/redwood-extended-care-facility/
This private facility provides patient support to adults with an Acquired Brain Injury (ABI) and significant behavioural challenges.
Volunteer Stroke Scheme – http://www.strokescheme.ie/
The VSS facilitate Stroke Support Groups which provide an opportunity for Stroke Survivors to come together on a weekly basis.
Acquired Brain Injury Ireland – http://www.abiireland.ie/
Established in 2000, Acquired Brain Injury Ireland [formerly The Peter Bradley Foundation] is Ireland’s “leading provider of flexible and tailor-made services for people with an Acquired Brain Injury (ABI).”
HSE South East Rehabilitation Planning Team –
(Regional Adult Acquired Brain Injury Services) Monastery House, Golden Road, Cashel, Co. Tipperary. Tel: 062-64905/6/7
This community based multi-disciplinary team provide a rehabilitation service to people with ABI in Carlow, Kilkenny, South Tipperary, Waterford & Wexford.
Baggot St. Hospital Stroke Rehabilitation Unit – http://www.strokerehabunit.ie/en/
The Stroke Rehabilitation Unit provides wide-ranging rehabilitation and support to people with stroke, their families and their carers. It is the only dedicated stroke out-patient facility in the Republic of Ireland.
Acquired Brain Injury Ireland – http://www.abiireland.ie
Founded in 2000 as the Peter Bradley foundation, ABI Ireland enables people between the ages of 18 and 65 with an acquired brain injury to live an independent life by providing them with a supportive living environment.
Brain Tumours
Irish Cancer Society – http://www.cancer.ie/
The Mission of the Irish Cancer Society is to play a vital role in achieving world-class cancer services in Ireland.
Information on brain tumours is available on http://cancer.ie/pdf/Types_of_Cancer/brain_tumours_backup.pdf, or phone them on 1800 200 700 to get information on Brain Tumour Support Groups in Dublin, Cork and Galway.
Brainstrust UK – http://www.brainstrust.org.uk/index.php
Brainstrust is a charity that offers pragmatic support and advice at the point of diagnosis, and a very useful resource, “The Brain Box”.
PARC Road Safety Group – http://www.parcroadsafety.ie
PARC Road Safety Group is an Irish NGO advocating for road safety and road traffic victims which was set up in 2006. The group is made up of people throughout Ireland who have been affected by road traffic collisions, having either lost loved ones in road crashes or sustained serious injury.
Family Carers Ireland – http://www.familycarers.ie
Family Carers Ireland is a registered charity (number CHY 10962) and a company limited by guarantee, emerging from the coming together of two long standing charities of over 25 years – The Carers Association and Caring for Carers in 2016. The merger brings the best of both charities together whilst broadening the range of services and supports to family carers and giving one national voice to represent fairness for carers.
Cork Counselling – http://corkcounselling.ie/
The Cork Counselling Centre is dedicated to providing professional, accessible and high quality counselling services, helping our clients to improve their emotional and mental health.
Galway Head Injury Support Group – http://www.galwayheadinjury.com/
Contact Telephone number 091 768 168
This group provides support, information and counselling to families of people with brain injury in Galway.
Home and Community Care Ireland – http://hcci.ie/.
Home and Community Care Ireland is the trade association for private home care providers in Ireland. Many private care facilities are registered members.
Irish Association for Counselling and Psychotherapy – http://www.irish-counselling.ie/
Established in 1981, the IACP identifies, develops and maintains professional standards of excellence in counselling and psychotherapy through education, training and accreditation.In promoting best practice and the professional development of its members, IACP holds at its core the protection of the public. IACP is a registered Charity representing over 3,500 members. The site has a searchable directory of accredited counsellors.
Family Resource Centres – http://www.tusla.ie/services/family-community-support/family-resource-centres/
Through its established network of centres the Family Resource Centre programme of TUSLA is Ireland’s largest family support programme delivering universal services to families in disadvantaged areas across the country based on a life-cycle approach.The aim of the FRC programme is to combat disadvantage and improve the functioning of the family unit. Each FRC operates autonomously working inclusively with individuals, families, communities, and both statutory and non statutory agencies. Many Family Resource Centres offer low or no-cost counselling services.
General Disability Services
IWA – Motoring Services – http://www.iwa.ie/services/motoring
IWA offers a wide range of Motoring services that support people in gaining increased independence and mobility. Assessment, tuition, information regarding disabled driver permits etc.
CareersPortal.ie – http://www.careersportal.ie/disability/
CareersPortal is Ireland’s “leading online resource for people of all ages involved in the planning or changing their career path.” Their disability section has a range of vocational and career planning resources for people with all forms of disability.
Peamount Healthcare – http://peamount.ie/
Peamount Healthcare is an independent voluntary organisation that provides a range of high quality health and social care services: Rehabilitation Services for older people and those with respiratory conditions. Residential Services for people with a neurological disability, people with an intellectual disability and older people. Community Services including an outpatients’ department, day care for older people, and diagnostic tests to the public.
Aphasia Ireland – http://aphasiaireland.ie/
Aphasia Ireland is a registered charity, formed with the sole aim of creating awareness and support for sufferers and those around them.
DeafHear – http://www.deafhear.ie
DeafHear is a National Charity providing specialist services to Deaf and Hard of Hearing people and their families in Ireland.
Centres for Independent Living – http://www.dublincil.org/
The Centers for Independent Living in Ireland, are user-led organisations working in partnership with others, committed to all people with disabilities being recognised as equal citizens and achieving equal membership of society, to make informed decisions about our own lives in accordance with individual needs and lifestyle choices, to design and develop our own services, to achieve equality of experience: through consensus, respect and value for all.
Dublin Bus Travel Assistance Scheme – https://www.dublinbus.ie/Your-Journey1/Accessibility/Travel-Assistance-Scheme/
The Travel Assistance Scheme is run by Dublin Bus in the Greater Dublin Area to help you use public transport on your own. An assistant can accompany you the first few times you travel and give you advice on planning a journey using Dublin bus, the DART or the Luas. The Travel Assistance Scheme is free and is for people aged 18 or over.
The Sonas Group – http://www.sonas.ie
Services for independent living, home care and support in a range of locations (inc. Athlone, Roscommon, Sligo).
NCBI – The National Sight Loss Agency – http://www.ncbi.ie
NCBI, the national sight loss agency, is a not for profit charitable organisation which provides support and services nationwide to people experiencing sight loss.
Hamilton Park Care Facility, Balrothery – http://hamiltonpark.ie/
Hamilton Park is a purpose built healthcare facility, with specific units to provide quality care in the following areas:
Alzheimer’s Illness; High Dependency Care; Long Stay Care; Convalescent Care; Brain Injuries; Pre & Post Transplant Convalescent Care
As well as these specific services, the centre provides Day Care and Respite Care.
Employer Disability Information – http://www.employerdisabilityinfo.ie/
The purpose of the Employer Disability Information service is to provide employers with an expert peer source of advice and information on employing staff with disabilities, with a view to enhancing the confidence and competence of individual employers to employ, manage and retain staff with disabilities.
AssistIreland – http://www.assistireland.ie
Assistireland.ie contains information on daily living aids, mobility aids and assistive technology. It includes a directory of products available from suppliers for people with disabilities and older people. Assist Ireland is provided by the Citizens Information Board.
National Advocacy Service for People with Disabilities – http://www.citizensinformationboard.ie/services/advocacy_services/
The National Advocacy Service (NAS) was set up to provide independent, representative advocacy services for people with disabilities. It is organised and managed on a regional basis by the Boards of five Citizens Information Services and is supported by the Citizens Information Board.
Ahead – http://www.ahead.ie
Ahead is the Association for Higher Education, Access and Disability. It is an independent non-profit organisation working to promote full access to and participation in further and higher education for students with disabilities and to enhance their employment prospects on graduation.
St. Mary’s Hospital, Phoenix Park – http://www.myhomefromhome.ie/homes/files/St-_Mary_s_Hospital-_Phoenix_Park-_Dublin_20_0.pdf
Tel: 01 6250 300
This service provides long-stay residential places for people with brain injuries. It also has a Stroke Unit. See the link to the booklet for more information.
Disabled Drivers Association of Ireland – http://ddai.ie/
The members of the Disabled Drivers Association of Ireland are exclusively people with disabilities working for people with disabilities. The members are an important source for the generation of new initiatives. Awareness of needs or services that exist is often prompted by individual members, or by a combination of individual contributions by letter, telephone, or by email.
HSE – Health Services in Ireland – http://www.hse.ie/eng/services/list/
The HSE provides health and social services to everyone living in Ireland. Their services are delivered to young and old, in hospitals, health facilities and in communities across the country. Services are listed by topic, and under each heading you will find more detail on those services.
Irish Wheelchair Association – http://www.iwa.ie
The Irish Wheelchair Association is an important provider of quality services to people with limited mobility throughout the country.
South Dublin County Council Disability Liaison / Access – http://www.sdcc.ie/the-council/policies-and-plans/disability-access
On this site you will find information regarding the many developments that contribute to improved access to facilities and services in our County. Many of the improvements have taken place due to the implementation of both the Barcelona Declaration and the Disability Act (2005).
Cheshire Ireland – http://www.cheshire.ie
Cheshire Ireland provides a range of residential and support services for people with disabilities and is committed to empowering people to live independently.
The Rehab Group – http://www.rehab.ie
Rehab is a charity that champions the value of diversity and inclusion for people with a disability or disadvantage in their communities. Their mission is to help the people they serve to be more independent and to contribute to and be more included in their communities
Cerebral Palsy Guide – http://www.cerebralpalsyguide.com
(USA) Cerebral Palsy Guide provides free educational materials, financial options and support to help those affected by this disorder.
Stroke Information and Resource Guide – https://www.acls.net/stroke-information-and-resources.htm
The ACLS Training Center was the first website to offer online (Advanced Cardiovascular Life Support) ACLS training. The Stroke Information and Resource Guide offers a basic guide on stroke and what do in the event of experiencing one.
Headway UK – http://www.headway.org.uk
Headway UK is a charity set up to give help and support to people affected by brain injury. A network of local Groups and Branches throughout the UK offers a wide range of services, including rehabilitation programmes, carer support, social reintegration, community outreach and respite care. We also operate a free, confidential helpline service and produce a wide range of information materials for brain injury survivors and carers.
Brainlink – http://www.brainlink.org.au/page/35/abi-information-kit
BrainLink is a community-based care and education organisation in Victoria, Australia. It has excellent information to download, inlcuding the Acquired Brain Injury Information Kit.
Jessica Taylor – From Tragedy to Triumph – http://www.jessicaetaylor.org
Jessica is a brain injury survivor who has written extensively on her experience and been a passionate advocate for people with head injuries.
Synapse – http://synapse.org.au/
Formerly The Brain Injury Association of Queensland, Synapse is dedicated to reconnecting the lives of those affected by Brain Disorders.
CerebralPalsyGuidance.com – http://www.cerebralpalsyguidance.com
Information for parents of children with cerebral palsy.
International Brain Injury Association – http://www.internationalbrain.org
The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.
Brain Injury Association of America – http://www.biausa.org
The Brain Injury Association of America (BIAA) is the leading national organization serving and representing individuals, families and professionals who are touched by a life-altering, often devastating, traumatic brain injury (TBI) in the USA
TBI Resource Guide – http://www.neuroskills.com
The TBI Resource Guide is the internet’s central source of information, services and products relating to traumatic brain injury, brain injury recovery, and post-acute rehabilitation.
Brainline.org – http://www.brainline.org
BrainLine is a national US multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury.
Strive Rehabilitation @Hawke’s Bay http://www.striverehabilitationhb.org.nz
Strive Rehabilitation @ Hawke’s Bay in New Zealand provides rehabilitation for people with brain injuries. Their focus is on social, cognitive, educational and prevocational rehabilitation.
Tuck Resources on Sleep and Traumatic Brain Injury – https://www.tuck.com/trauma-and-sleep/#how_trauma_affects_sleep
Evidence-based sleep health information, news, and unbiased product reviews.
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