Headway Privacy Notice

This information applies to any personal information you might supply to Headway for any purpose. For information specifically about your privacy whilst using the Headway website, please refer to our website privacy statement

Headway takes the responsibility of looking after your personal information very seriously. This page explains what information we keep and why, how long we keep it and how we make sure that it is kept safe and secure. It also explains your rights under the law and how you can access or correct data, get a copy of your records or request that your data be removed from our systems.

You can also download a full version of the Headway Data Protection Policy

Why we keep information

We look for information from you for a variety of reasons. The different reasons are:

  • To provide you or your family member with rehabilitation services
  • To send you newsletters or information mailings or emails
  • For fundraising purposes
  • For research purposes
  • To enable you to use our website

When we ask for your information we will always explain what we are using the information for. We will not use information that we get for one reason for a different purpose without first asking your permission.

Details about Headway

All personal data is kept on behalf of Headway Brain Injury Services and Support. The company name is Headway (Ireland) clg. Our address is:

Headway, Blackhall Green, Off Blackhall Place, Dublin 7

Telephone:  01 604 0800

Who or what gives us the right to hold your information?

We hold information because you have given us permission to do so, called consent. You indicate your consent in different ways.

For example, when you browse our website, you click a button to consent to the website recording some of your information. When you fill in an application form, you consent for us to share some of your personal details and information about your rehabilitation.

You are never obliged to give us your personal information, but if you choose not to, it means that we will not be able to provide you with a service.

You have the right to withdraw your consent for us to hold or process your data at any time. This would mean that we would not be able to provide you with a service.

What information do we hold?

We hold only the information that we need in order to provide you with a quality service. In the case of our rehabilitation services or our research projects, this means that we might have to hold a large amount of information about you, including your medical history and other sensitive information such as medical reports and rehabilitation progress reports.

We recognise that this means we have to take special care of this sensitive information to make sure it is kept safely. We have special systems with extra layers of security to protect that information so that only those who need access to it can see it.

For reasons other than providing rehabilitation services or research, we will hold only basic information. In most cases this will be contact information, such as name, address, telephone number and email address.

You can find a full list of all the data we collect by consulting the Public Register at the office of the Data Protection Commissioner. This is available online at www.dataprotection.ie

Who looks after it?

The person with overall responsibility for managing the security of all information is the Data Protection Officer. Different Headway staff members may play different roles in helping to keep your information accurate and up to date. For example, if we provide you with services, your keyworker will be responsible for keeping your information up to date.

The Data Protection Officer is Richard Stables, and you can contact him at stablesr@headway.ie or by telephone at 01 604 0800


How do we look after it?

We hold your information in systems which are kept as secure as possible. Some information is kept on paper and some is kept electronically. In both cases we have security systems in place to prevent unauthorised access to your information and to prevent it from becoming damaged. You can refer to Headway’s full Data Protection Policy available from our website at


for more information about how your data is stored.

Who do we share your information with?

We share information with other people only with your permission, in order to provide you with a service. We only share the information that those people need to know and we share it in a way that we can ensure it is secure.

There are certain circumstances in which we are obliged to share the information we hold about you with other people without you giving permission. These circumstances will be fully explained to you when you come into our service. They include

  • Any situation in which you pose a danger to yourself or to other people
  • Any situation which tells us about the possibility of harm to a child or vulnerable adult
  • Any situation required by a court of law
  • Any situation required by Gardai for investigating a crime

The full version of the Headway policy on Data Protection lists all the possible reasons we might give your information to another person without your permission.

How long do we keep information?

If you are a client of Headway and have applied for our service, we keep your records typically for 8 years after you have completed service with us. After that period they are destroyed. There are a couple of exceptions to this, which are outlined in the full Data Protection policy.

Our full Data Protection Policy gives details on exactly how long we keep information you have supplied for other purposes.

What are my rights?

Under the Data Protection Acts (1988 and 2003), you have the right to:

  • Access the information we hold about you.
  • If you find that any of the information is incorrect, you also have the right to have it changed.
  • Under the most recent regulations, you also have the right to have your information supplied in an electronically portable format.
  • Also under recent regulations, you can also request that your records be erased from our system.

You can use the form at the end of this document to make a request for a copy of your information or to have it corrected or deleted. We will deal with that request within one month of your request.

You also have the right to request to be removed from direct marketing and you have the right to withdraw your consent for us to have your information (see the section “Who or what gives us the right to hold your information?”)

Can I make a complaint?

Yes. If you are not happy with an aspect of our Data Protection Policy, you can make a complaint to Headway, by contacting us at

Headway, Blackhall Green, off Blackhall Place, Dublin 7 or by telephoning at 01 604 0800.

Or, you can send an email to info@headway.ie

Where can I get more Information?

You can request a copy of our full Data Protection Policy from any Headway Staff member or you can download it from our website at


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